TY - BOOK AU - Betz,Cecily Lynn AU - Coyne,Imelda TI - Transition from pediatric to adult healthcare services for adolescents and young adults with long-term conditions: an international perspective on nurses' roles and interventions SN - 9783030233846 AV - RJ245 .T73 2020eb U1 - 610.73/62 TRA 23 PY - 2020///] CY - Cham PB - Springer KW - Teenagers KW - Medical care KW - Youth KW - Chronically ill KW - Care KW - Pediatric nursing KW - Electronic books N1 - Includes bibliographical references; Dedication by Cecily Betz and Imelda Coyne Foreword by Cecily Betz and Imelda Coyne Chapter 1. Introduction/OverviewCecily Betz and Imelda CoyneChapter 2. Empowering young persons during the transition to adulthood (examples from Congenital Heart Disease, Belgium)Mariela Acuna Mora, Ewa-Lena Bratt, Carina Sparud-Lundin & Philip MoonChapter 3. Determinants of quality of healthcare for adolescents and young adults within different cultures. DR. NABEEL ALYATEEMChapter 4. Evidence base for nurses roles in the transitional care for young people with long term care. (drawing on a systematic review and examples from UK). Fiona Campbell Chapter 5. Analysis of self-management and transition measures for nursing practice in transition. Kathleen J. SawinChapter 6. On Your Own Feet: How to improve transitional care and young people's self-management. A practical framework for nurses (programme in Netherlands). AnneLoes van Staa, Dr. Jane SattoeChapter 7. Nurses' role in developing and monitoring for transition related outcomes Bethany CoyneChapter 8. Benchmarks for transition as an initiative to improve transitional care services (examples from UK) Susie Aldiss Chapter 9. Transition in Cystic Fibrosis: an international experience Dr Susan Madge & Daniel Office Chapter 10. Adaptation of a Broad-Based Youth Transition Programme: A Nurse-Led Cystic Fibrosis Transition Initiative Anna M. Gravelle Chapter 11. Nurse-led effort in developing, implementing and evaluating health care transition and promoting developmentally appropriate health care in young people with bleeding disorders Prof. Deborah Christie & Prof Kate Khair Chapter 12. Transitional care for young adults with chronic endocrine disorders (not diabetes) Andrew DwyerChapter 13. Conclusion Cecily Betz and Imelda CoyneChapter 14. Tools for Practice; research instruments that might be considered (i.e. readiness assessment; QoL measures; and so forth) Cecily Betz and Imelda Coyne ER -